Autism Night Before Christmas - A Poem

This poem was written by Cindy Waeltermann, who is the founder of AutismLink. It sums up pretty nicely what really goes on in the family of a child/children who are on the spectrum.



Twas the Night Before Christmas
And all through the house
The creatures were stirring
Yes, even the mouse


We tried melatonin
And gave a hot bath
But the holiday jitters
They always distract


The children were finally
All nestled in bed
When nightmares of terror
Ran through my OWN head


Did I get the right gift
The right color
And style
Would there be a tantrum
Or even, maybe, a smile?


Our relatives come
But they don’t understand
The pleasure he gets
Just from flapping his hands.


“He needs discipline,” they say
“Just a well-needed smack,
You must learn to parent…”
And on goes the attack


We smile and nod
Because we know deep inside
The argument is moot
Let them all take a side


We know what it’s like
To live with the spectrum
The struggles and triumphs
Achievements, regressions…


But what they don’t know
And what they don’t see
Is the joy that we feel
Over simplicity


He said “hello”
He ate something green!
He told his first lie!
He did not cause a scene!


He peed on the potty
Who cares if he’s ten,
He stopped saying the same thing
Again and again!


Others don’t realize
Just how we can cope
How we bravely hang on
At the end of our rope


But what they don’t see
Is the joy we can’t hide
When our children with autism
Make the tiniest stride


We may look at others
Without the problems we face
With jealousy, hatred
Or even distaste,


But what they don’t know
Nor sometimes do we
Is that children with autism
Bring simplicity.


We don’t get excited
Over expensive things
We jump for joy
With the progress work brings


Children with autism
Try hard every day
That they make us proud
More than words can say.


They work even harder
Than you or I
To achieve something small
To reach a star in the sky


So to those who don’t get it
Or can’t get a clue
Take a walk in my shoes
And I’ll assure you


That even 10 minutes
Into the walk
You’ll look at me
With respect, even shock.


You will realize
What it is I go through
And the next time you judge
I can assure you


That you won’t say a thing
You’ll be quiet and learn,
Like the years that I did
When the tables were turned…….

Ahh the Christmas Spirit

So here we are comrades in arms, the holidays, not only with all the happiness that the joy of the season brings, but the madness, the sheer unadulterated craziness, oh and not to mention the fact that if you have a child with special needs it adds just a bit of bitter sweetness as well. They don't get it, or perhaps they only get that one thing. The thing that they cling to, say over and over and over again. Or what if they get fixated on the wrong thing, like say, that you open gifts on Christmas eve, when you tell them over and over again that no, the present opening happens on Christmas day. And then you wake up in a cold sweat on December 22nd when you realize that come the 24th, the biggest fit you have ever seen is going to ensue when you tell the child that no they have to wait one more day. Or how about the family members who just don't get it. Who tell you that he will grow out of it, that it will get better when they are older and don't believe in Santa anymore. Bullshit....and now, bah humbug as this might sound. I can't wait til December 26th. When everything is open, and the stress of it has subsided, and the gifts are given. And I can stop worrying, for 5 minutes....til the next holiday....

Welcome to Crazytown, Population: Everybody

We're here. We're weird. Our kids are weird. Some days we're happy and funny. Other days we're pissed and funny. Sometimes happy and pissed and other times miserable and pissed. Not always funny, sadly. Some days just plain sad. Here goes!